I have been very disheartened by recent news regarding the prevention of premature birth. If I were to ever get pregnant again, there are a few things that would need to be put into place. One is the placement of a cerclage. The other is the possible use of a terbutaline pump, which the FDA has recently declared unsafe for pregnant women. The other is the use of a weekly progesterone shot, P17. This week, KV Pharmaceuticals won FDA approval to be the exclusive manufacturer of this drug, now called Makena. What once was a compounded, widely available drug that cost $10-$20 per injection will now soar to a cost of $1500 per injection! That’s a total cost of $30,000 per pregnancy. I just wonder how many babies will be born premature because of this company’s greed. This is terrifying to me and completely unacceptable. I know many micro-preemie moms who have gone on to have full term babies with the help of this drug. The March of Dimes, who I have whole-heartedly supported, were in favor of this FDA approval, although they say they had no knowledge of the price increase that would transpire. I think, however, that if the March of Dimes truly cares about saving babies. . .they need to take action and try to make this right. You cannot be in support of KV Pharmaceuticals and preventing premature birth. Many fellow micro-preemie moms are boycotting the walk for this reason. To be honest. I haven’t decided whether we are or not. I still believe in the goodness of the organization and what they have done for babies. But, it literally makes me sick because I have this belief that if I do ever become pregnant again, I would never have to go through what I went through again. Nobody else should either. We are talking about women who have been through premature birth once before and deserve a chance at a full term pregnancy. Babies deserve to have a fighting chance! Maybe this doesn’t affect you personally, but it will definitely affect your health care rates. I will, however, be writing to the March of Dimes, KV Pharmaceuticals and to my congressmen. I hope some of you will as well. The following blog post by Eliza Grace’s mom gives you the contact information that you will need.
Blog Post about KV Pharma/MOD
http://eliza-grace-micro-preemie.blogspot.com/2011/03/march-of-dimes-and-kv-pharmacueticals.html?spref=fb
http://delangefamilytx.blogspot.com/2011/03/march-of-dimes.html
http://ok-corral.blogspot.com/2011/03/march-of-dimes-and-kv-pharmaceuticals.html
If anyone has anything they would like to add, please feel free to leave a comment. Many of you are more familiar with this drug and can provide additional information.