This year we had an old lady and a princess. I thought Olivia's costume was a hoot! She played the part very well too and had a lot of fun with it. Abigail the princess could have gone trick or treating all night. . .well at least until the clock struck midnight. She loved it! Hope everyone's Halloween was great!
Having a child on the autism spectrum sometimes cannot be explained. It must be experienced to truly understand what it is like for the child. You must be willing to feel their difficulties with your heart in order to help them through. Even the simplest things can be the hardest. And those are the things that society understands the least which makes them even harder still!
Change is really hard for Olivia, especially when it comes to her room. I'm unable to change out a picture, remove a big item or rearrange furniture without a huge meltdown. Today I went to Target knowing that Olivia needed new sheets. Her Circo Happy Flower fitted sheet is torn in the corner and needed replaced. Unfortunately, those particular sheets can no longer be purchased. So, I bought the closest thing I could find, which of course is still night and day different to Olivia. And I washed them and I put them on her bed. I debated whether doing that or explaining it to her beforehand, but I knew either way would be hard. She spotted her new pillowcase and came out sobbing. She continued sobbing off and on throughout the entire evening and it increased closer to bedtime. Sleeping with different sheets is a huge thing to her. And as her mother, I feel her anxiety whereas some people would become angry and tell her to get over it. That's how the world often responds to those with autism. . .especially to those who appear "just fine" on the outside. Olivia is old enough now that she can explain how change and surprises are very hard for her. She knows most people don't respond the way she does. She doesn't understand why she feels the way she does, but knows herself pretty well. And I've learned right along with her. Without her as my guide, I would not be the mom I am today. She makes me better, more compassionate, more aware. . . I mean, how many other moms know the location of every manual toilet/non-stall bathroom in their surrounding areas? Olivia has a crippling fear of automatic flushing toilets, so I don't just memorize those by choice. It's a necessity.
Anyway, I left the new sheets on, but switched her pillowcase back and let her take her old sheets to bed with her. It will be a tough transition. We went through this a few weeks back with her beloved pajama pants that had gotten a huge hole in them. Baby steps. Baby steps. And understanding. That's all anyone needs. . .is to be understood and accepted for who they are. For those times when change is hard, I feel it is up to me to guide her, very slowly, but in the direction she needs to go. She doesn't just make me a better mom. She makes me a better person.
I unexpectedly gave birth at 23 weeks to micro-preemie twins on August 27, 2007. Olivia Paige weighed just 1 lb 1.5 oz and was 11.5 inches long. Logan William weighed just 1 lb 1.75 oz and was 11.5 inches long. Our sweet Logan passed away after 1 month and 1 day. After 105 days, we were able to bring Olivia home. She is our miracle, our survivor, our joy. . .
On November 20, 2012 we welcomed little sister, Abigail, into our lives. She was born at 35 weeks, but only spent 8 days in the hospital before coming home. We feel very blessed. To contact Ryan and Jodi you may email them at: firstname.lastname@example.org or email@example.com
You were the perfect little boy Of whom we always dreamed. Did you know we had your name picked out? All along or so it seemed.
You even had your daddy’s hands So miniature in size. In life we never got to hold you Or even see your opened eyes.
We had so many plans for you. Did you know you are a twin? I wanted you to grow up together. What a pair you would have been!
I wanted to take you to the park And push you on the swing. I wanted to teach you how to walk, And read and write and sing.
I wanted to show you a fire truck And let you ride upon a horse. I wanted to take you to the zoo To see the giraffes, of course.
I wanted you to watch cartoons And play video games with dad. And you and I would take a nap Oh, the times we would have had.
But, your mommy’s plans were not to be. “I have other plans,” God said. “You won't be playing in life’s playground You’ll be playing in heaven instead.”
And although I ache with sadness And in my arms I long to hold. I’ll see you again in heaven When my story on earth’s been told.
A thousand tiny fireflies Parading through the night Illuminate the starless skies With incandescent light They are miracles, here on earth So bold, so strong, so wise And bring to life a sense of worth For those who lack great size.
Some of this life’s smaller treasures Are the ones which matter more Than the larger joys and pleasures That we have grown to adore Volume is not as essential As the gift that lies inside Smaller souls with much potential Who shall never be denied.
A thousand tiny fireflies Parading through the night Illuminate the starless skies With incandescent light These children, while born premature Are testaments of worth Their spirits bold, their futures sure To ever bless the earth.