Wow, I have just been a bit overwhelmed lately. Many of Olivia's health problems have just surfaced over the past year. She has gastroparesis and was put on EryPed, which seemed to help, but it was extremely expensive. So, we switched to the generic erythromycin and it seems to make her really nauseous. Her doctor says there wouldn't be a difference between them, but we swear that there is. On top of gastroparesis, she has had hematuria and proteinuria. . .of which nobody seems to have a clue why. They are targeting a problem with her kidneys, which I believe I have mentioned before. Next step is a kidney biopsy. She is also having frequent headaches that no one can figure out. Olivia also recently underwent testing for learning disabilities and ADHD. We get those results this afternoon. If you could just say a little prayer for Olivia. . .that doctors would get to the bottom of everything so I will know the best way to help her. She is a trooper, as usual, but I know the tests and appointments have been difficult for her.
I unexpectedly gave birth at 23 weeks to micro-preemie twins on August 27, 2007. Olivia Paige weighed just 1 lb 1.5 oz and was 11.5 inches long. Logan William weighed just 1 lb 1.75 oz and was 11.5 inches long. Our sweet Logan passed away after 1 month and 1 day. After 105 days, we were able to bring Olivia home. She is our miracle, our survivor, our joy. . .
On November 20, 2012 we welcomed little sister, Abigail, into our lives. She was born at 35 weeks, but only spent 8 days in the hospital before coming home. We feel very blessed. To contact Ryan and Jodi you may email them at: email@example.com or firstname.lastname@example.org
You were the perfect little boy Of whom we always dreamed. Did you know we had your name picked out? All along or so it seemed.
You even had your daddy’s hands So miniature in size. In life we never got to hold you Or even see your opened eyes.
We had so many plans for you. Did you know you are a twin? I wanted you to grow up together. What a pair you would have been!
I wanted to take you to the park And push you on the swing. I wanted to teach you how to walk, And read and write and sing.
I wanted to show you a fire truck And let you ride upon a horse. I wanted to take you to the zoo To see the giraffes, of course.
I wanted you to watch cartoons And play video games with dad. And you and I would take a nap Oh, the times we would have had.
But, your mommy’s plans were not to be. “I have other plans,” God said. “You won't be playing in life’s playground You’ll be playing in heaven instead.”
And although I ache with sadness And in my arms I long to hold. I’ll see you again in heaven When my story on earth’s been told.
A thousand tiny fireflies Parading through the night Illuminate the starless skies With incandescent light They are miracles, here on earth So bold, so strong, so wise And bring to life a sense of worth For those who lack great size.
Some of this life’s smaller treasures Are the ones which matter more Than the larger joys and pleasures That we have grown to adore Volume is not as essential As the gift that lies inside Smaller souls with much potential Who shall never be denied.
A thousand tiny fireflies Parading through the night Illuminate the starless skies With incandescent light These children, while born premature Are testaments of worth Their spirits bold, their futures sure To ever bless the earth.