Wednesday, December 5, 2007 - Update

Olivia is doing well and her feeding schedule has been changed from every 3 hours to ad lib, but she can’t go longer than 4 hours between feedings. I bottled her at 6:00 pm, however, and she only took 30 ccs. When she is done, she cannot be forced to take anymore. I tried to get her to take a bit more tonight, against my better judgment and she desatted. She will be having her car seat test tonight. They will monitor her heart rate and saturation for an hour and a half while in the car seat. I’m guessing it will still be a few days before we’re moved to family care. I would personally like to see her go a few days without a brady first. Also, her bloodwork today showed that she is slightly anemic again, her GGT (liver enzyme) is elevated again and her alk-phos is higher than ever. I would like to learn more about what that all means before I’ll feel comfortable taking her home. Now, I know I will probably never feel comfortable right at first no matter how long she waits to come home, but I’d like to have a little peace of mind. I’m also hoping that someone can help answer this question for me. On Monday, she had a pretty bad brady and became unresponsive. We finally got her breathing again with more oxygen and stimulation, but in those kinds of situations. . .how do you know if you should begin CPR? How long do you give her to come back up? It just terrifies me. Ryan and I have decided that we want 2 people with Olivia at all times. So, if one of us has to leave we would love it if someone would come over for a while. (Of course. . . you must be completely well with hands thoroughly washed, etc.) I also would love if someone would go with me to her doctor appts if Ryan is unable to. I don’t know how I’m going to do it all by myself with her carrier, diaper bag, apnea monitor and oxygen tank. . .in the wintertime. Plus, what do you do if you’re driving down the road and the apnea monitor goes off? Can you tell I’m just a bit apprehensive today? As much as I’m dying to have her home. . .I just pray every day that God will let us know when the time is right.